Tuesday, June 19, 2018
One of my daughters has cerebral palsy. She requires a lot of attention and time because she can’t do things herself, that at four and half, almost five years old, [she] should be able to do. She’s come a long way from where she was, but she still needs help most of the time. She can get herself dressed but she still needs help sometimes, not so much with feeding but getting on the toilet, getting off the toilet, brushing her teeth, putting on her shoes, putting on her socks, and walking. Which is a huge thing, plus not only that, being an occupational therapist, there is a ton more pressure on me to--I know, I’m almost too much. So, I know that if she’s going to walk, then this is the time to do it. I may come home [from work] and work with her for a couple hours, spend a little time with Emily, her sister. Or have Emily do the exercises with us. Most of my time is either working, doing Meghan’s therapy, taking care of the kids, cleaning the house -- which is low on the priority list, to be honest with you -- and researching online, all the time, to see what’s out there. You know, like going into a chat room. I belong to a chat room for people who have CP [cerebral palsy]. Could be adults, kids, parents. I spend a lot of time on there just kind of figuring out what is out there for people. I should probably mention my husband in there. I spend a little time with him [laughter]. I do spend some time with him as well. But you know I don’t really go out; I don’t have time for leisure. I do go to the gym in the morning, so I do balance that. I do belong to the Leicester Parent Advisory Council. Which is a special education advisory council for the special education department of Leicester and I’m the vice chair.
from Voices of Worcester Women